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A Senate bill
originally designed to combat use of human growth hormone by athletes and
celebrities has been altered in recent weeks to protect another group: children
who use HGH to counter growth deficiencies.
Senators
Charles Schumer, D-N.Y., and Chuck Grassley, R-Iowa, have dropped language in
the bill that would have put HGH on the same legal plane as anabolic steroids, a
move that would have severely limited access to the synthetic
hormone.
For
example, under the bill's original language, HGH would not have been widely
available through the mail and would not have been available in longer than
six-month supplies. Because doctors specializing in childhood growth disorders
often are far from patients, such controls could have caused hardship for
families with children using the drug.
"We've
ran into some things that we didn't anticipate. We were enlightened by the
parents whose children legitimately need HGH," Grassley told USA TODAY on
Tuesday. "Making it (a more tightly controlled substance) would have created a
lot of red tape for them."
However,
the new draft of the bill includes language that would prohibit use of HGH "for
Athletic Performance, bodybuilding, or anti-aging" purposes, according to Beth
Pellett Levine, a spokeswoman for Grassley. Other than requiring a prescription,
there currently is no list of approved or unapproved uses for HGH, which can aid
recovery and fuel muscle growth.
The new
bill also would make possessing HGH for personal use without a prescription a
federal crime.
"We
believe we can solve the families' problems with the bill and still clamp down
on improper use of HGH," Schumer said in an e-mail. "The proposal we're working
on should be able to do both."
The bill
could be brought up for a vote by the Senate in the coming
weeks.
A
groundswell of opposition to the original version of the bill was created last
month when it appeared it was on the verge of unanimous approval in the Senate.
Groups such as the Magic Foundation, a non-profit that provides support for
families dealing with children with growth disorders, mobilized its
members.
"I think
the number of calls they received really shocked them," said Mary Andrews, CEO
and co-founder of the Magic Foundation.
Some of
the those calls came from Tamera Garrett of St. Charles, Ill. She said her
9-year-old daughter, Madison, who was diagnosed with Idiopathic Short Stature
(ISS), may not have been eligible to receive HGH if the bill would have passed
in its original form.
"Some
disorders just aren't recognized, but there's still a need for the medication,"
Garrett said.
Seven-time
Cy Young Award winner Roger Clemens used HGH,
according to Major League Baseball's Mitchell Report, which cited information
from Clemens' former personal trainer Brian McNamee. In an appearance before a
congressional committee, Clemens denied under oath that he used
HGH.
New York
Yankees pitcher Andy Pettitte admitted
using HGH before baseball banned it in 2005.
"They
have made our lives harder, whether the bill passes or not," said Ed Champ of
Manorville, N.Y., whose son Ryan, 8, has been prescribed HGH the last 5½
years.
"For the
last three months, our family and hundreds of other families worried about this
bill, all because of the actions of a few select people."
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